raretraitswiss.ch - Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria

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Description: Find treatment- gene therapy. - Fundraising.- We are a Swiss Non-Profit organization with a mission to develop a cure for AspartylGlucosaminUria (AGU) and prepare a clinical trial .- AGU is a genetic lysosomal neuro-degenerative disease. - our mission - raise awareness - Fund the medical research - manufacture the cure for AGU kids

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Rare Trait Swiss ( 008.727.799/01) is a tax registered non-profit organization with a mission to develop a cure for AspartylGlucosaminUria (AGU) , a genetic neuro-degenerative disease. 

We need to raise $2 million to manufacture the medicine for a clinical trial taking place in 2022 to cure this disease and we currently need your help to raise CHF500,000 to secure the manufacturing.

Aspartylglucosaminuria or AGU for short, is an ultra-rare genetic disease belonging to a group of lysosomal storage disorders. Lysosomes are cellular compartments containing enzymes, responsible for the final (cellular) breakdown of fats, proteins and sugars. A malfunction of this enzyme leads to the physical and neurological disease manifestations.

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