ttpregistry.net - Hereditary Thrombotic Thrombocytopenic Purpura (hTTP)

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Description: The Hereditary TTP Registry is an ultra-rare disease registry with the aim to collect both retrospective and prospective clinical, molecular, and observational data on patients (and their family members) with confirmed or suspected hereditary TTP

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Welcome to the website of the Hereditary TTP Registry

Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease

read more about hereditary TTP

Links to ttpregistry.net (1)

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