Description: The Joy and the Sorrow of Raising a Child with Charge Syndrome... and other stuff too...
The Joy and the Sorrow of Raising a Child with Charge Syndrome… and other stuff too…
Dear Virginia Department of Medical Assistance Services,
Countless parents of children with disabilities in the Commonwealth of Virginia worked so hard last year to get legislation passed through the Virginia General Assembly that would allow parents to be paid caregivers for their own children with disabilities on a permanent basis, a measure that was temporarily made possible during the Federal Public Health Emergency during the COVID 19 pandemic, but that was due to end upon its conclusion.