Inhibitor Education for People with Bleeding Disorders | NBDF
Description: The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education, advocacy and research.
hemophilia (35) blood disorders (25) bleeding disorders (11)
Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys offering researchers a 360-degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their non-affected family members (parents, spouses, grandparents, and siblings), it provides all the opportunity to participate in patient-reported outcomes research.
Connect with other families affected by bleeding disorders in your area through NHF's chapter network.
“NHF strengthens our community and gives us a sense that we belong to something bigger than ourselves—that we’re all in this together. That’s an amazing feeling.” — Monica, Community Member
Inhibitor Education for People with Bleeding Disorders | NBDF