Description: Cure Sanfilippo, Gene therapy, Get help for Sanfilippo, MPS, MPS III, Rare diseases, lysosomal disease, and Fundraising
mps (214) rare diseases (67) sanfilippo (16) lysosomal disease (10) mps iii (2) fundraising sanfiliippo (1)
During the past 15 months we have chosen to respect the hardships of many families and communties during the CoVid 19 lockdowns and many who didn't have a steady source of income Our clinical trial of trehalose was delayed and hopefully will be back on track soon as hospitals are fully opened up and IRB's are being approved etc Meanwhile we have another trail coming up to fund as well So let the fundraisers and activities begin TSF will have another announcement coming soon that families may be excitied abo
January 17, 2020 Today we are excited to announce that Kathy Nay will be joining our Team as a Board Member Kathy has been a long-time supporter of TSF ... Learn More
TSF has ongoing campaigns with tee shirts and sweat shirts for Sanfilippo families supporting Sanfilippo and personalized awareness, as well as ribbons and bows, soldier garden flags, angel garden ... Learn More