Description: We are an organization created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene.
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"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.
Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.
Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.
Combined Brain
Beyond the Ion Channel | The ILAE Genetics Commission Blog
Michael & Son Helping Hands on NBC
FamilieSCN2A Foundation
FamilieSCN2A Foundation
Beyond the Ion Channel | The ILAE Genetics Commission Blog
FamilieSCN2A Foundation
FamilieSCN2A Foundation