Description: Myalgic Encephalomyelitis (ME)
Today, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II. The letter urges Secretary Azar to implement the International Consensus Criteria (ICC), disseminate the International Consensus Primer (IC Primer), use the name Myalgic Encephalomyelitis and to stop the campaign to implement, disseminate and code systemic exertion intolerance disease (SEID).
Please read the full letter here .
Please email, phone or visit your congressional representatives and urge them to contact Secretary Azar to implement the ICC, disseminate the IC Primer, use the name Myalgic Encephalomyelitis and stop the campaign to implement, disseminate and code SEID. When you contact your Congressman briefly explain how Myalgic Encephalomyelitis has impacted your life and use the open letter as your talking points for your asks.