A Consequence of Hypoglycemia. | What good is an incurable disease if you can’t share it with the rest of the world.
Description: A safe place to share your lupus secrets. No judgement. No shame. Merely catharsis through honesty.
submission (540) fatigue (296) lupus (132) sle (40) spoonie (26)
I am a teacher, and working with kids is literally the only thing I’ve ever wanted to do. I was diagnosed in 2013 after a stroke caused by antiphosphilipid antibody syndrome. Before that, doctors told me I was stressed or depressed despite complaining of muscle and joint pain/fatigue for a year. I don’t know how much longer I can work now that my feet, ankles and knees hurt daily. I am a single parent, and I’m terrified about the future. I am tired of pain and fear and it’s all getting harder. Share Your Se
During that timeframe I had almost 2-4 doctors appointments each week and almost every doctor was a specialist in a different area. Nine times out of ten they would look at my blood test results look over my entire body and the day we see it in your blood results with the high ANA along with other high positives but you look perfectly happy. Then they would start asking my mom if maybe I’m just depressed ‘are you sure she’s not just making up symptoms’ this is how nearly all of my doctor appointments would
Only other lupies can understand the pain and fear you get when you can tell there’s something wrong with your body but yet you look fine so surely your making it up. I finally gave up and stopped going to doctors they would mention lupus but then say it’s impossible for me to have it when we have no family history of any auto immune diseases, this is a disease I will have to deal with for the rest of my life for now I mange on my own with self medicating with marijuana. It doesn’t help everyday but most da
A Consequence of Hypoglycemia. | What good is an incurable disease if you can’t share it with the rest of the world.