menararediseases.org - MENA Organization for Rare Diseases

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Description: MENA Organization for Rare Diseases is dedicated to advancing research, raising awareness, and providing support for individuals with rare diseases in the MENA region.

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MENA REGION

People with rare diseases and their families face many difficulties because of the scarceness of knowledge about these conditions and limited support available for them. The goals of MENA Organization for Rare Diseases are to educate, connect, and support:

We aim to educate, spread knowledge, and increase awareness about rare diseases among healthcare provides, patients and their families, researchers, public, pharmaceutical companies, laboratories, administrators, and decision makers. We achieve this goal through organizing scientific conferences, family meetings, social activities, workshops, and training programs. We also utilize online tools including publishing newsletters, create educational webpages, and place posts on social media.

Links to menararediseases.org (3)



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