I was diagnosed with VACTERL association. I live with a number of rare conditions that make me different from most of you. Some of these conditions cause me pain, others cause me delays, some may make me appear weird but I’m not. I’m just a great guy with an uplifting story to tell.
I was diagnosed with VACTERL association. I live with a number of rare conditions that make me different from most of you. I’m also a great guy with an uplifting story to tell. Read along.
Let me introduce myself I am Lwanele. I was born in June 2017 with a whole lot of special conditions and have been diagnosed with VACTERL association . This is a disorder that affects many body systems. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. People diagnosed with VACTERL association typically have at least three of these characteristic features. I have a little bit more than that.