Description: The KLS Foundation provides information and support to those diagnosed with KLS and their families.
As a result there is very little incentive for researchers and pharmaceutical companies to invest in KLS research.
KLS is a rare and complex neurological disorder characterized by recurring periods of excessive amounts of sleep, altered behavior, and a reduced understanding of the world where the patient becomes progressively drowsy and sleeps for most of the day and night, sometimes waking only to eat or use the bathroom.
The KLS Foundation hosts a group on Facebook where patients and caregivers can share their stories, seek advice, and offer support to one another.
KLS Support UK - Helping families affected by Kleine-Levin Syndrome
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Kleine Levin Syndrome - KLS - Our Story