Description: Meckenzie has Sanfilippo Syndrome. Without treatment, she will not live to adulthood. You can help children like Meckenzie by contributing to our campaign to raise funds to fast-track research into this childhood dementia.
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Meckenzie has Sanfilippo Syndrome. Without treatment, she will not live to adulthood. You can help children like Meckenzie by contributing to our campaign to raise funds for research into this childhood dementia.
Meckenzie is a social butterfly and full of personality and giggles. Her favourite thing to do is meet and greet new people. Meckenzie's big brother Kyle treasures every day he has left with his little sister.
On 23rd May 2013 we received the most shocking news we had ever been presented with, it was never expected. Meckenzie had Sanfilippo Syndrome Type A. We were still trying to absorb the diagnosis of a mild intellectual disability; it was now the prognosis of a degenerative road to certain death before adulthood.