Description: Jobe has Sanfilippo Syndrome. Luckily his twin brother Tate does not. Without treatment, Jobe will not live to adulthood. You can help children like Jobe by contributing to our campaign to raise funds for research into this childhood dementia.
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Jobe has Sanfilippo Syndrome. Luckily his twin brother Tate does not. Without treatment, Jobe will not live to adulthood. You can help children like Jobe by contributing to our campaign to raise funds for research into this childhood dementia.
Timothy and Tenille Koistinen, the proud parents of twins Tate and Jobe had their lives turned upside down when their son Jobe was diagnosed with Sanfilippo Syndrome in March 2018. At the tender age of two, Jobe's life, while only just beginning, will be cut short by Sanfilippo.
As a parent, all we hope to do is protect our children, fight for them and do everything in our power to rid them of pain. And we will fight. Jobe has proven to be a fighter since starting his journey of life at 29 weeks. He chose us to fight life with him. He continues to fill our hearts with bursting endless love everyday and has his fraternal twin brother Tate by his side protecting him every step. We need hope. Hope for progress in research and hope for access to clinical trials to bring us closer to a