butterflychildren.org.uk - DEBRA UK - The butterfly skin charity

Description: DEBRA is the national charity supporting individuals and families affected by Epidermolysis Bullosa (EB). We fund research to improve treatment and cure EB

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Graeme and the team have smashed their Channel Swim, but there's still a way to go to achieve a life free of pain for people living with EB. Please donate today and help us #StopThePain. Read more

The insight will help ensure that the services DEBRA offers are fully in-line with the needs of the EB community. Read more

On Monday 19th June, we held a reception at the House of Commons to raise awareness of the painful genetic skin blistering condition, EB, and the need for government support to find effective drug treatments. Read more