Boys With Bigger Hearts is a documentary film exploring Hunter Syndrome, or mucopolysaccharidosis II (MPS II), through the story of three families affected by the disease. Filmmaker, Joey Howell, documented the lives of three boys living with Hunter Syndrome for six years in order to show what living with the condition is like.
Trey Purcell and Jack Fowler were diagnosed with MPS II at a young age. In 2011, Trey was accepted into a human trial for IT Elaprase, a drug engineered to treat Hunter Syndrome, but Jack was denied. IT Elaprase proved to be more effective than anyone had expected for those suffering from MPS II, and the film depicts a thriving, healthy Trey while also showing the horrific reality of Jack\u2019s physical and mental decline. After multiple, desperate pleas from the Fowler family and the public, Shire, the dr
Boys With Bigger Hearts is a documentary film exploring Hunter Syndrome, or mucopolysaccharidosis II (MPS II), through the story of three families affected by the disease. Filmmaker, Joey Howell, documented the lives of three boys living with Hunter Syndrome for six years in order to show what living with the condition is like. Hunter Syndrome is a rare disease affecting around 2,000 people.