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Welcome to the Sickle Cell Disease Association of America Inc.’s Sickle Cell Disease Educational Information Repository (SCD Repository) which was designed to provide an up-to-date directory of disease education, information and resources.
The SCD Repository was developed as a product of the HRSA-funded Sickle Cell Disease Newborn Screening Follow-up Program (SCDNBSFP) which is comprised of seventeen (17) community-based organization (CBO) partnerships. The SCDNBSFP provides recruitment, care coordination, education and outreach to individuals living with sickle cell disease and their families.