Veronica’s Voyage | Alpers Awareness/Veronica's Voyage
(Note: For current advancements in Alpers research and treatments, please see our Facebook news feed at the bottom of this page.)
Thank you for visiting Alpers Awareness/Veronica’s Voyage. This site serves to raise awareness of Alpers Syndrome – and celebrate the life of our beloved Veronica – through news, events, and other resources. If you are reading this because of a loved one, please know that you are not alone. We are here to help you in any way we can. Please refer to What Do I Do Now? for help and check back often for updates. You may follow our sweet Veronica’s Voyage on CaringBridge.org and on our Veronica’s Voyage page. Yo
Alpers Syndrome, also known as Alpers-Huttenlocher Syndrome , is genetically inherited and affects the production of energy on a cellular level. Sadly, there is currently no treatment or cure. It is one of many mitochondrial illnesses and can be diagnosed with a DNA test of the POLG1 gene. Parents of children with Alpers do not develop Alpers because they carry a dominant, healthy POLG1 gene. However, they also possess a mutation of the gene which can be unknowingly passed on to their child. Alpers occurs o
Veronica’s Voyage | Alpers Awareness/Veronica's Voyage